FTD-RisC

FTD-RisC (Frontotemporal Dementia Risk Cohort) is a longitudinal research study that aims to find novel biomarkers for genetic FTD. Participants include family members of mutation carriers, who have a 50% risk of being at risk of FTD. Modalities include brain MRI, blood and cerebral spinal fluid (CSF), neuropsychological testing and behavioral questionnaires. FTD-RisC is set-up in 2010 by the Department of Neurology of Erasmus MC, Rotterdam/NL.

Data and Resources

This dataset has no data

Additional Info

Field Value
Title FTD-RisC
Description

FTD-RisC (Frontotemporal Dementia Risk Cohort) is a longitudinal research study that aims to find novel biomarkers for genetic FTD. Participants include family members of mutation carriers, who have a 50% risk of being at risk of FTD. Modalities include brain MRI, blood and cerebral spinal fluid (CSF), neuropsychological testing and behavioral questionnaires. FTD-RisC is set-up in 2010 by the Department of Neurology of Erasmus MC, Rotterdam/NL.
Keywords
Contact points
Contact point 1
URI
Name
Erasmus MC Imaging Office
Name (translations)
Email
imagingoffice.radiology@erasmusmc.nl
Identifier
URL
Publisher
Publisher 1
URI
Name
Erasmus MC
Name (translations)
Email
imagingoffice.radiology@erasmusmc.nl
URL
https://www.erasmusmc.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/018906e22
Creator
Creator 1
URI
Name
Erasmus MC
Name (translations)
Email
imagingoffice.radiology@erasmusmc.nl
URL
https://www.erasmusmc.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/018906e22
Landing page
Release date
Modification date
Temporal start date
Temporal end date
In Series
    Version
    Version notes
    Identifier https://xnat-rad.research.erasmusmc.nl/data/archive/projects/FTDRisCNew
    Frequency
    Provenance
    Type
    Temporal coverage
    Temporal resolution
    Spatial coverage
    Spatial resolution in meters
    Access rights http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC
    Other identifier
    Theme
    1. http://publications.europa.eu/resource/authority/data-theme/HEAL
    Language
    1. http://id.loc.gov/vocabulary/iso639-1/en
    Documentation
    Conforms to
    Is referenced by
    Distribution
    Sample
    Analytics
    Applicable legislation
    1. http://data.europa.eu/eli/reg/2025/327/oj
    Has version
    Code values
    Coding system
    Purpose
    Health category
    Health theme
    Legal basis
    Minimum typical age
    Maximum typical age
    Number of records
    Number of records for unique individuals.
    Personal data
    Publisher note
    Publisher type
    Trusted Data Holder
    Population coverage
    Retention period
    Health data access body
    Qualified relation
    Provenance activity
    Qualified attribution
    Attribution 1
    Agent
    Agent 1
    URI
    Name
    Lize Jiskoot
    Name (translations)
    Email
    imagingoffice.radiology@erasmusmc.nl
    URL
    https://www.erasmusmc.nl/
    Homepage
    Type
    Identifier
    https://orcid.org/0000-0002-1120-1858
    Role
    https://standards.iso.org/iso/19115/resources/Codelists/gml/CI_RoleCode.xml#author
    Attribution 2
    Agent
    Agent 1
    URI
    Name
    Harro Seelaar
    Name (translations)
    Email
    imagingoffice.radiology@erasmusmc.nl
    URL
    https://www.erasmusmc.nl/
    Homepage
    Type
    Identifier
    https://orcid.org/0000-0003-1989-7527
    Role
    https://standards.iso.org/iso/19115/resources/Codelists/gml/CI_RoleCode.xml#author
    Quality annotations
    URI https://fdp.erasmusmc.nl/dataset/5aab703e-b44e-49c0-b816-5f7061b291a5