BioDay Registry

The BioDay registry is a disease or condition registry for atopic dermatitis (AD)/prurigo nodularis (PN). All patients treated with advanced systemic therapy (biologics and JAK inhibitors [JAKi]) for AD are eligible for inclusion in the prospective, multicenter, observational BioDay registry. Patients are treated in a daily practice setting and the choice of treatment is determined by shared decision making and according to the Dutch AD guidelines. During all visits both clinical outcomes (e.g. EASI, IGA) and patient reported outcomes (e.g. NRS itch, DLQI,ADCT/RECAP) are collected.

Data and Resources

This dataset has no data

Additional Info

Field Value
Title BioDay Registry
Description

The BioDay registry is a disease or condition registry for atopic dermatitis (AD)/prurigo nodularis (PN). All patients treated with advanced systemic therapy (biologics and JAK inhibitors [JAKi]) for AD are eligible for inclusion in the prospective, multicenter, observational BioDay registry. Patients are treated in a daily practice setting and the choice of treatment is determined by shared decision making and according to the Dutch AD guidelines. During all visits both clinical outcomes (e.g. EASI, IGA) and patient reported outcomes (e.g. NRS itch, DLQI,ADCT/RECAP) are collected.
Keywords
Contact points
Contact point 1
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Contacts/firstName=BioDay&lastName=ContactEmail&resource=BioDay
Name
BioDay ContactEmail
Name (translations)
Email
bioday@umcutrecht.nl
Identifier
URL
Publisher
Publisher 1
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=UMCU&resource=BioDay
Name
University Medical Center Utrecht
Name (translations)
Email
info@umcu.nl
URL
https://www.umcutrecht.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/0575yy874
Creator
Creator 1
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Medisch%20Centrum%20Leeuwarden&resource=BioDay
Name
Medisch Centrum Leeuwarden
Name (translations)
Email
info@mcl.nl
URL
https://www.mcl.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/0283nw634
Creator 2
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Antonius&resource=BioDay
Name
Antonius Ziekenhuis
Name (translations)
Email
info@mijnantonius.nl
URL
https://www.mijnantonius.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/0489xrh07
Creator 3
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=St.%20Antonius%20Ziekenhuis&resource=BioDay
Name
St. Antonius Ziekenhuis
Name (translations)
Email
info@antoniusziekenhuis.nl
URL
https://www.antoniusziekenhuis.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/01jvpb595
Creator 4
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Meander&resource=BioDay
Name
Meander Medisch Centrum
Name (translations)
Email
info@meandermc.nl
URL
https://www.meandermc.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/04n1xa154
Creator 5
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Tjongerschans&resource=BioDay
Name
Tjongerschans
Name (translations)
Email
info@tjongerschans.nl
URL
https://www.tjongerschans.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/021dfp132
Creator 6
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=MUMC&resource=BioDay
Name
Maastricht University Medical Centre
Name (translations)
Email
info@mumc.nl
URL
https://www.mumc.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/02d9ce178
Creator 7
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Spaarne%20Gasthuis&resource=BioDay
Name
Spaarne Gasthuis
Name (translations)
Email
info@spaarnegasthuis.nl
URL
https://spaarnegasthuis.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/05d7whc82
Creator 8
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Isala%20Ziekenhuis&resource=BioDay
Name
Isala
Name (translations)
Email
info@isala.nl
URL
https://www.isala.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/046a2wj10
Creator 9
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Catharina%20Ziekenhuis&resource=BioDay
Name
Catharina Ziekenhuis
Name (translations)
Email
info@catharinaziekenhuis.nl
URL
https://www.catharinaziekenhuis.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/01qavk531
Creator 10
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Radboudumc&resource=BioDay
Name
Radboud University Medical Center
Name (translations)
Email
info@radboudumc.nl
URL
https://www.radboudumc.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/05wg1m734
Creator 11
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=ZorgSaam&resource=BioDay
Name
ZorgSaam
Name (translations)
Email
info@zzv.nl
URL
https://www.zorgsaam.org/
Type
Publisher note
Publisher type
Identifier
https://ror.org/01qkq7780
Creator 12
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=WKZ&resource=BioDay
Name
Wilhelmina Children's Hospital
Name (translations)
Email
info@umcutrecht.nl
URL
https://www.hetwkz.nl/en/en
Type
Publisher note
Publisher type
Identifier
https://ror.org/05fqypv61
Creator 13
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Bravis&resource=BioDay
Name
Bravis Ziekenhuis
Name (translations)
Email
info@bravisziekenhuis.nl
URL
https://www.bravisziekenhuis.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/05564wx43
Creator 14
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Diakonessenhuis&resource=BioDay
Name
Diakonessenhuis hospital
Name (translations)
Email
info@diakonessenhuis.nl
URL
http://www.diakonessenhuis.nl/Pub
Type
Publisher note
Publisher type
Identifier
https://ror.org/01nrpzj54
Creator 15
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=UMCU&resource=BioDay
Name
University Medical Center Utrecht
Name (translations)
Email
info@umcu.nl
URL
https://www.umcutrecht.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/0575yy874
Creator 16
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Tergooi&resource=BioDay
Name
Tergooi
Name (translations)
Email
info@tergooi.nl
URL
https://www.tergooi.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/045nawc23
Creator 17
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=UMCG&resource=BioDay
Name
University Medical Center Groningen
Name (translations)
Email
researchdatacatalogue@umcg.nl
URL
https://www.umcg.nl
Type
Publisher note
Publisher type
Identifier
https://ror.org/03cv38k47
Creator 18
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=IJsselland%20Ziekenhuis&resource=BioDay
Name
IJsselland Ziekenhuis
Name (translations)
Email
info@ysl.nl
URL
http://www.ysl.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/03qh1f279
Creator 19
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=Nij%20Smellinghe&resource=BioDay
Name
Ziekenhuis Nij Smellinghe
Name (translations)
Email
info@nijsmellinghe.nl
URL
https://www.nijsmellinghe.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/030gj2p37
Creator 20
URI
http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Agents/id=HagaZiekenhuis&resource=BioDay
Name
Haga Hospital
Name (translations)
Email
info@hagaziekenhuis.nl
URL
https://www.hagaziekenhuis.nl/
Type
Publisher note
Publisher type
Identifier
https://ror.org/03q4p1y48
Landing page http://bioday.nl
Release date
Modification date
Temporal start date
Temporal end date
In Series
    Version
    Version notes
    Identifier https://doi.org/10.71739/feb4-qv18
    Frequency http://publications.europa.eu/resource/authority/frequency/AS_NEEDED
    Provenance

    Multicenter prospective observational atopic dermatitis registry
    Type
    Temporal coverage
    Temporal resolution
    Spatial coverage
    Spatial coverage 1
    URI
    http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Overijssel
    Label
    Geometry
    Bounding Box
    Centroid
    Spatial resolution in meters
    Access rights http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC
    Other identifier
    Theme
    1. http://publications.europa.eu/resource/authority/data-theme/HEAL
    Language
    Documentation
    Conforms to
    Is referenced by
    Distribution
    Sample
    Analytics
    Applicable legislation
    1. http://data.europa.eu/eli/reg/2022/868/oj
    Has version
    Code values
    Coding system
    Purpose
    Health category
    Health theme
    Legal basis
    Minimum typical age
    Maximum typical age
    Number of records
    Number of records for unique individuals.
    Personal data
    Publisher note
    Publisher type
    Trusted Data Holder
    Population coverage
    Retention period
    Health data access body
    Qualified relation
    Provenance activity
    Qualified attribution
    Quality annotations
    URI http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/Resources/id=BioDay