A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis

This dataset includes patient and clinical characteristics, and questionnaire responses of n=107 patients whom participated in the study: "A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis". Patients were treated with a brace for their scoliosis during this study.

Patient characteristics include self-reported characteristics including age, sex, education, BMI. Clinical characteristics include cobb angle at diagnosis, at initiation of bracing, at inclusion in this study, and Lenke classification. Questionnaires include a first measurement of the EQ-5D-5L, EQ-5D-Y-5L, the corresponding Visual Analogue Scales, the SRS-22r (scoliosis-specific questionnaire). A second measurement of these questionnaires was obtained at least 7-14 days after completions of the first; approximately 75% of patients responded to the second measurement.

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Title A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis
Description

This dataset includes patient and clinical characteristics, and questionnaire responses of n=107 patients whom participated in the study: "A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis". Patients were treated with a brace for their scoliosis during this study.

Patient characteristics include self-reported characteristics including age, sex, education, BMI. Clinical characteristics include cobb angle at diagnosis, at initiation of bracing, at inclusion in this study, and Lenke classification. Questionnaires include a first measurement of the EQ-5D-5L, EQ-5D-Y-5L, the corresponding Visual Analogue Scales, the SRS-22r (scoliosis-specific questionnaire). A second measurement of these questionnaires was obtained at least 7-14 days after completions of the first; approximately 75% of patients responded to the second measurement.

Keywords
Contact points
Contact point 1
URI
Name
Contact dataset owners via DataverseNL.
Name (translations)
Email
rso@erasmusmc.nl
Identifier
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Publisher
Publisher 1
URI
Name
Erasmus MC
Name (translations)
Email
rso@erasmusmc.nl
URL
https://www.erasmusmc.nl/en/contact-details-and-directions
Type
Identifier
NL-EMC
Creator
Creator 1
URI
Name
Jan A.N. Verhaar
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
https://orcid.org/0000-0003-3016-9600
Creator 2
URI
Name
Christopher Faber
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
70
Creator 3
URI
Name
Adriaan K. Mostert
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
71
Creator 4
URI
Name
Charles M.M. Peeters
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
https://orcid.org/0000-0001-6292-6202
Creator 5
URI
Name
Max Reijman
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
https://orcid.org/0000-0001-6316-9629
Creator 6
URI
Name
Diederik H.R. Kempen
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
https://orcid.org/0000-0001-6840-4851
Creator 7
URI
Name
Gouke J. Bonsel
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
https://orcid.org/0000-0002-8364-1086
Creator 8
URI
Name
Joshua M. Bonsel
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
https://orcid.org/0000-0002-9143-5506
Creator 9
URI
Name
Joost P.H.J. Rutges
Name (translations)
Email
rso@erasmusmc.nl
URL
https://dataverse.nl/dataset.xhtml?persistentId=doi:10.34894/PDJZXH
Type
Identifier
https://orcid.org/0000-0002-9452-415X
Landing page https://doi.org/10.34894/PDJZXH
Release date 2024-04-21T22:00:00+00:00
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    Identifier doi:10.34894/PDJZXH
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    Spatial resolution in meters
    Access rights http://publications.europa.eu/resource/authority/access-right/RESTRICTED
    Other identifier
    Theme
    1. https://publications.europa.eu/resource/authority/data-theme/HEAL
    Language
    1. http://id.loc.gov/vocabulary/iso639-1/en
    Documentation
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    Is referenced by
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    Applicable legislation
    1. https://dataverse.nl/api/datasets/:persistentId/versions/1.0/customlicense?persistentId=doi:10.34894/PDJZXH
    Has version
    1. 1.0
    Code values
    Coding system
    Purpose
    Health category
    Health theme
    Legal basis
    Minimum typical age
    Maximum typical age
    Number of records
    Number of records for unique individuals.
    Personal data
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    Population coverage
    Retention period
    Health data access body
    Qualified relation
    Provenance activity
    Qualified attribution
    Quality annotations
    URI https://fdp.erasmusmc.nl/dataset/11d63ef8-0c83-4058-afc3-1ad73b25b17b