https://fdp.heart-institute.nl/dataset/dda57a52-4629-4d5e-b750-e0612420e0fa
type: Dataset
contact point: Kind
  fn: DCVA
  has URL: ']
keyword: Cohort
keyword: Female
keyword: OUTREACH
keyword: Not available
keyword: Male
keyword: Population-based
keyword: Medical records
qualified attribution: Attribution
  agent: Dutch Cardiovascular Alliance (DCVA)
theme: HEAL
applicable legislation: oj
access rights: RESTRICTED
creator: Dutch Cardiovascular Alliance (DCVA)
description: Rationale: Whilst patients with a tetralogy of Fallot have excellent survival in the present day, adverse events still occur regularly. However,risk stratification in these patients is not sufficient at this moment. Objective: The objective of this study is to report the long-term follow-up after ToF repair in a relatively large cohort and to determine predictors of long-term adverse outcomes. Study design: Retrospective observational study Study population: patients operated for tetralogy of Fallot in in the Netherlands Intervention (if applicable): n/a Main study parameters/endpoints: Cardiac related adverse events during the follow-up of tetralogy of Fallot
issued: 2021-01-01T00:00:00+00:00
language: en
modified: 2026-08-09T02:43:24.485040
provenance: ProvenanceStatement
publisher: Dutch Cardiovascular Alliance (DCVA)
spatial: NLD
temporal: PeriodOfTime
  end date: 2025-12-31T00:00:00+00:00
  start date: 2021-01-01T00:00:00+00:00
title: Outflow tract related aging with congenital heart defects: identifying causes and mechanisms of myocardial and large vessel wall adaptation, predictors for long term outcome and targets for improved treatment. Workpackage retroFallot study
max typical age: 73
min typical age: 9
number of unique individuals: 550
population coverage: collection type: Cohort,Population-based | data categories: Medical records | materials: Not available | omics: Not available | imaging: N | sex: Female,Male