@prefix adms: <http://www.w3.org/ns/adms#> .
@prefix dcat: <http://www.w3.org/ns/dcat#> .
@prefix dcatap: <http://data.europa.eu/r5r/> .
@prefix dct: <http://purl.org/dc/terms/> .
@prefix foaf: <http://xmlns.com/foaf/0.1/> .
@prefix healthdcatap: <http://healthdataportal.eu/ns/health#> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix vcard: <http://www.w3.org/2006/vcard/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Resources/id=OncoLifeS> a dcat:Dataset ;
    dcatap:applicableLegislation <http://data.europa.eu/eli/reg/2022/868/oj> ;
    healthdcatap:numberOfUniqueIndividuals "10000"^^xsd:nonNegativeInteger ;
    dct:accessRights <http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC> ;
    dct:accrualPeriodicity <http://publications.europa.eu/resource/authority/frequency/NEVER> ;
    dct:creator <http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=OZG&resource=OncoLifeS>,
        <http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=Treant%20Zorggroep&resource=OncoLifeS>,
        <http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=UMCG&resource=OncoLifeS> ;
    dct:description """We have established a hospital-based data-biobank, entitled OncoLifeS (Oncological Life Study: Living well as a cancer survivor) to link routinely collected clinical data with preserved biological specimens and quality of life assessments. The OncoLifeS data-biobank has been designed to facilitate cancer research by providing clear phenotypic and genotypic data in a clinical context.

Observational study involves collecting routine clinical data about carefully selected patient groups, and this can be combined with genetics and omics data from biological specimens. Indeed, understanding cancer heterogeneity, its temporal evolution over time, and the outcomes of guided treatment depend on accurate data about patient characteristics and their clinical management. Linking these routine clinical data to preserved biological specimens can then enable reproducible research capable of discovering biomarkers of cancer and/or treatment response, evaluating personalized treatment approaches, and increasing patient awareness. Including quality of life assessments may provide relevant information on how cancer and its treatment affects the subjective well-being of patients."""@en,
        ""@nl ;
    dct:identifier <https://doi.org/10.34760/5f5b7ff62dd52> ;
    dct:issued "2026-03-06T10:27:36.355614"^^xsd:dateTime ;
    dct:modified "2026-04-12T17:00:46.910556"^^xsd:dateTime ;
    dct:provenance [ a dct:ProvenanceStatement ;
            rdfs:label ""@en,
                ""@nl ] ;
    dct:publisher <http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=UMCG&resource=OncoLifeS> ;
    dct:spatial <http://publications.europa.eu/resource/authority/country/NLD> ;
    dct:title "Oncology Life Study"@en,
        ""@nl ;
    adms:versionNotes ""@en,
        ""@nl ;
    dcat:contactPoint <http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Contacts/firstName=Janny&lastName=Nagel&resource=OncoLifeS> ;
    dcat:keyword "Adolescents and young adults with cancer"@en,
        "Advantage Database Server"@en,
        "Age-related disease"@en,
        "Anaplastic Thyroid carcinoma"@en,
        "Artificial intelligence  AI  methods"@en,
        "Availability of data and materials"@en,
        "Big-data analytics"@en,
        "Biological specimens"@en,
        "Biomarkers"@en,
        "Biomaterial collection"@en,
        "Biomaterial processing"@en,
        "Biomaterials"@en,
        "Bone and soft tissue cancer"@en,
        "Breast cancer"@en,
        "Cancer Research Centre"@en,
        "Cancer care"@en,
        "Cancer incidence"@en,
        "Cancer research"@en,
        "Clinical and treatment details"@en,
        "Clinical context"@en,
        "Clinical data"@en,
        "Clinical data collection"@en,
        "Clinical departments"@en,
        "Clinical outcome"@en,
        "Colon cancer"@en,
        "Colorectal cancer"@en,
        "Comorbidities"@en,
        "Data access"@en,
        "Data collection"@en,
        "Data management"@en,
        "Data protection"@en,
        "Data-biobank access"@en,
        "Dermatological cancer"@en,
        "Dutch Medical Research Involving Human Subject Act  WMO "@en,
        "Dutch Trial Register"@en,
        "Esophageal cancer"@en,
        "European General Data Protection Regulation"@en,
        "European reference network on rare cancers  EURACAN "@en,
        "Gastric cancer"@en,
        "Genetics"@en,
        "Genotypes"@en,
        "Genotypic data"@en,
        "Guided treatment"@en,
        "Haematology"@en,
        "Hematologic Cancer"@en,
        "Hepato pancreato biliary cancer"@en,
        "Hereditary increased risk of breast and ovarian cancer"@en,
        "Human Tissue and Medical Research  code of conduct for responsible use"@en,
        "ISO certification"@en,
        "Imaging data"@en,
        "Imaging data handling"@en,
        "Informed consent"@en,
        "LifeStore facility"@en,
        "Lifestyle"@en,
        "Long-term outcome data"@en,
        "Longitudinal"@en,
        "Medical Oncology"@en,
        "Mortality"@en,
        "Neuro Endocriene Carcinomen"@en,
        "Neuro Endocrine Tumors"@en,
        "Neuro-Oncology"@en,
        "Neuroendocrine tumors"@en,
        "Observational research"@en,
        "Obstetrics and Gynaecology"@en,
        "Omics data"@en,
        "Oncological care"@en,
        "Oncology Surgery"@en,
        "Oral and Maxillofacial Surgery"@en,
        "Otorhinolaryngology"@en,
        "PACS  Picture Archiving and Communication System "@en,
        "Participation rate"@en,
        "Pathological diagnosis"@en,
        "Pathological findings"@en,
        "Pathology"@en,
        "Patient characteristics"@en,
        "Patient reported data"@en,
        "Patient-reported data"@en,
        "Personalized treatment"@en,
        "Phenotypes"@en,
        "Phenotypic data"@en,
        "Protected workspace"@en,
        "Quality of care"@en,
        "Quality of life"@en,
        "Quality of life assessments"@en,
        "Quality of life data"@en,
        "Radiation Oncology"@en,
        "Radiological findings"@en,
        "Randomized clinical trials  RCTs "@en,
        "Rare tumors"@en,
        "Research proposal"@en,
        "Risk factors"@en,
        "Routine clinical care"@en,
        "Sarcoma"@en,
        "Software for data analysis"@en,
        "Storage"@en,
        "Testicular germ-cell tumors"@en,
        "Tissue"@en,
        "Translational research"@en,
        "Treatment response"@en,
        "Tumor working groups"@en,
        "Withdrawn consent"@en,
        "barrett oesophagus"@en,
        "cancer patient"@en,
        "gynecological oncology"@en,
        "head and neck oncology"@en,
        "lung oncology"@en,
        "lynch syndrome"@en,
        "oncology"@en,
        "radiological imaging"@en,
        "testicular oncology"@en ;
    dcat:landingPage <https://umcgresearch.org/w/oncolifes> ;
    dcat:theme <http://publications.europa.eu/resource/authority/data-theme/HEAL> .

<http://data.europa.eu/eli/reg/2022/868/oj> a <http://data.europa.eu/eli/ontology#LegalResource> .

<http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC> a dct:RightsStatement .

<http://publications.europa.eu/resource/authority/country/NLD> a dct:Location .

<http://publications.europa.eu/resource/authority/frequency/NEVER> a dct:Frequency .

<http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=OZG&resource=OncoLifeS> a foaf:Agent ;
    dct:identifier <https://ror.org/02mh2ah12> ;
    vcard:hasEmail <mailto:info@ozg.nl> ;
    foaf:homepage <https://www.ommelanderziekenhuis.nl/> ;
    foaf:name "Ommelander Ziekenhuis Groningen" .

<http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=Treant%20Zorggroep&resource=OncoLifeS> a foaf:Agent ;
    dct:identifier <https://ror.org/01tm5k604> ;
    vcard:hasEmail <mailto:info@treant.nl> ;
    foaf:homepage <https://www.treant.nl/> ;
    foaf:name "Treant Zorggroep" .

<http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Contacts/firstName=Janny&lastName=Nagel&resource=OncoLifeS> a vcard:Kind ;
    vcard:fn "Janny Nagel" ;
    vcard:hasEmail <mailto:j.nagel@umcg.nl> .

<https://umcgresearch.org/w/oncolifes> a foaf:Document .

<http://umcgresearchdatacatalogue.nl/catalogue_rdf/api/rdf/Agents/id=UMCG&resource=OncoLifeS> a foaf:Agent ;
    dct:identifier <https://ror.org/03cv38k47> ;
    vcard:hasEmail <mailto:researchdatacatalogue@umcg.nl> ;
    foaf:homepage <https://www.umcg.nl/> ;
    foaf:name "University Medical Center Groningen" .

